tag:blogger.com,1999:blog-22738696.post2971346902370754411..comments2023-04-06T07:24:17.832-04:00Comments on Keep it Together: We got TEFRA!!!!!!!!!!!!!!*Jess*http://www.blogger.com/profile/05190888590178233798noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-22738696.post-54901830721171329792009-06-03T11:54:04.631-04:002009-06-03T11:54:04.631-04:00I work at a disability advocacy organization in SC...I work at a disability advocacy organization in SC and have been looking more closely at issues involving TEFRA, EPSDT (Early & Periodic Screening, Diagnosis, & Treatment), and Autism. I am curious to know more about the services you will now be able to access through TEFRA and also would like to know what services you are being told are not available, such as ABA therapy. I think there may be an argument that ABA services should be provided to Medicaid eligible children, regardless of the PDD waiver. I would be grateful if you would email me at davison@protectionandadvocacy-sc.org so I can ask you more questions about your experience. Thanks!Jerrinoreply@blogger.comtag:blogger.com,1999:blog-22738696.post-8645228897133373472009-02-20T09:11:00.000-05:002009-02-20T09:11:00.000-05:00Hi Jess, I was looking up something on the interne...Hi Jess, <BR/>I was looking up something on the internet about TEFRA and came across your blog. Just wanted to clarify a few things you said about TEFRA, the PDD Waiver and Ryan's Law. First, the PDD Waiver is currently serving 370 kids and due to budget issues, it could stay there for a while but hopes are that due to the Stimulus package, funding will go back to where it was so that it will serve 525-550 as forseen. So, make sure you write your legislators to support it. By the way, my son is 10, on the PDD Waiver now for a little over a year and is making leaps and bounds even at age 10. So, although I agree that we need to get all kids in the program as early as possible, don't give up hope on progress if not. Also, Ryan's Law does specify how much coverage must be given for ABA and that is $50,000 a year total. Now does that mean that the insurance industry is following the intent of the law and not trying to put up hurdles, no. They are trying every trick in the book. But we are working on these issues and they have been brought up to the legislators and will be addressed. So while I know time is brain, don't give up hope. We are so much closer now than we were when my son was diagnosed in 2001 when there was no Ryan's Law or PDD Waiver. Let me know if I can help in any way! WWW.luluhowle.com and luluhowle@charter.net.<BR/><BR/>Keep up the good work with Jayce and my thought and prayers are with you!<BR/><BR/>Derrick Howle<BR/>The LUCAS Network<BR/>Greenville, SCAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-22738696.post-76005924803255787302008-08-21T22:43:00.000-04:002008-08-21T22:43:00.000-04:00YEAH!!! that is fantastic news! i deal with this ...YEAH!!! that is fantastic news! i deal with this all the time so i understand all the hoops you get to jump through and the mess and the good too. yeah for jayce. keep me posted on his preschool and all the other stuff. you are a good mommy :)Anonymoushttps://www.blogger.com/profile/07866254509692820905noreply@blogger.com